AF Association Patients Days
AF Association Patients Days aim to bring together patients, carers and medical professionals to learn from each other and share experiences of living with Atrial Fibrillation.
AF Association Patients Day 2014
Thank you to everyone who attended our annual AF Association Patients Day at Birmingham ICC on Sunday 5 October. The Day was a resounding success with presentations from eminent cardiologists, experts and an appearance by Fabrice Muamba, international football icon, who presented the Charles Lobban Award for Volunteer of the Year to Bob Dove, a tireless supporter of AF Association. Read more here.
Transcripts of the presentations are being prepared and they will be available shortly.
|Chair:||Jo Jerrome & Dr Glyn Thomas|
|10:00||Welcome and introduction||Jo Jerrome|
|10:05||Atrial fibrillation & atrial flutter - what are the differences & can I have both?||Dr Kim Rajappan|
|10:20||Cardioversion - short or long term solution?||Dr Chris Pepper|
|10:40||Catheter ablation - the recovery process & what to expect||Dr Mark O'Neill|
|11:00||Taking control of your AF||Trudie Lobban
Prof John Morgan
|11:30||The potential influence of the vagus nerve in AF||Dr Nicholas Gall|
|11:55||Improvements in the treatment of AF - looking forward||Dr Chris Pepper|
|Patients will be split into 2 groups with the faculty members rotating for each topic as per the session times below:
> Session 1: 13:45-14:15
> Session 2: 14:15-14:45
> Session 3: 14:45-15:15
> Session 4: 15:15-15:45
|The psychological impact of an AF diagnosis & ways to cope||Dr Glyn Thomas|
|Travelling with AF||Dr Matt Fay|
|Enhancing your patient voice||Ed McRandal|
|Anticoagulation therapy||Dr Steve Murray|
|15:45||Summary/call to action and thanks|
Europe AF 2013
Our annual Patients Day at Europe AF took place on Sunday 24th November 2013 at Park Plaza Riverbank Hotel in London. Ask questions to some of the leading heart rhythm specialists in the UK and share your experiences with other patients and carers.
|Chair:||Trudie Lobban / Jo Jerrome|
|13:30||Young with AF||Dr Mark O'Neill|
|14:00||When could I benefit from seeking referral to a heart rhythm specialist?||Prof Richard Schilling|
|15:30||Living with AF - physical activity, travel and remaining me||Prof Hugh Calkins|
|16:00||Medications v procedures for my heart rhythm||Dr Boris Schmidt|
|16:30||Anticoagulation - which therapy is appropriate||Dr Mark Earley|
AF Association Patients Day 2013
We ran our second Patients Day in Birmingham's The ICC this year. It was great to see lots of new faces. We had a diverse agenda covering topics like access to therapies, rights and expectations in the new NHS, exercise and AF, and support services for AF patients.
|Chair:||Dr Andrew Grace
|10:00||Diagnosis with AF - what care and management should all patients receive?||Stuart Allen|
|10:25||Symptomatic AF - what drug therapies are available?||Dr Andrew Grace|
|11:00||Ablation - who is this for, how might this improve my outcomes?||Dr Matt Wright|
|11:30||Diagnosed, assessed and treated, but what future can I expect and what follow up or care should I take?||Dr Matt Fay|
|11:55||What is my INR and what does it mean?||Prof David Fitzmaurice|
|13:45||Services which can support recovery after diagnosis of AF||Carolyn Shepherd|
|14:10||Rights and expectations in the 'new NHS'||Rachel O'Connor|
|Discussion tables (two options to choose from the topics)
Session One: 14:40-15:10
Session Two: 15:15-15:40
|Exercise and AF||Dr Adam Fitzpatrick|
|Anticoagulants - options and discussion||Dr Matt Fay & Jayne Mudd|
|Drugs and AF||Dr Andrew Grace & Carolyn Shepherd|
|Catheter ablation||Dr Ross Hunter & Dr Matt Wright|
|Accessing therapies||Vicki Hill & Ed McRandal|
|Managing your lifestyle and hearing from others||Bob Dove|
|15:40||Summary and thanks|
We look forward to seeing you next year!
Europe AF 2012
Europe AF Patients Day was held in London on Sunday 18th November 2012. Over 50 patients and carers attended at the London Park Plaza Riverbank Hotel.
Professor Hugh Calkins was among the clinicians who presented on the day. His presentation on cattheter ablation can be viewed here.
2012 AFA Patients' Day at the Heart Rhythm Congress (HRC), ICC Birmingham
AFA Patients' Day 2012 was our most successful to date. We were joined by over 150 patients and atrial fibrillation specialists on Sunday 23rd September 2012 at The ICC in Birmingham.
Patients were presented with seminars on various issues surrounding AF, which were led by prominent names in arrhythmia healthcare. This was followed by a workshop where clinicians were interacting with patients to answer questions and gain a better understanding of diagnosis, treatment options and living with AF.
2011 AFA Patient Day at the Heart Rhythm Congress (HRC)
A tremendous day was enjoyed by more than one hundred AFA members at this year’s HRC AFA Patient Day. An interactive exhibition enabling delegates to try out catheter tools, AEDs (Automated External Defibrillators) and learn more about existing and new support services and devices available, the day started with a breakfast workshop seeking opinions and ideas for new on-line information resources for Atrial Fibrillation (AF).
By mid-morning we were learning about how we can all be involved from volunteering and fundraising to sharing information and ensuring AF is a priority within NHS services.
Presentations then followed looking at assessing the risk factors, the role of anti-arrhythmic drugs and anti-coagulants.
With presenters happy to stay and talk with delegates long after the close, AFA would like to thank all members of Faculty for their time and support in making this day possible.
If you would to register for further information on AFA Patient day at HRC 2012, to be held in Birmingham at the ICC, please email email@example.com.
2010 AFA Patient Day at the Heart Rhythm Congress
Members arrived from across the UK to attend the annual AFA Patient Day held in Birmingham during the Heart Rhythm Congress.
The packed day was enjoyed by over one hundred AFA members and offered access to the exhibition, where AED Locator, AllClear Insurance, Arrhythmia Alliance, Medtronic, Omron, Roche, St Jude, and STARS all had stands offering information, hands on experience of devices and monitors and access to key representatives who were very happy to talk about the technology and new options on show.
The day also provided presentations ranging from being under 60 with AF, exercise and AF, living alongside AF and the importance of ‘know Your Pulse’ and greater understanding and insight into current and new treatment options, why do we develop AF? And how can we judge and interpret trial results. Completing on the role of therapy and hypnotherapy in supporting the person ‘behind the condition’ and then the popular ‘Any Questions’, the day was complete.
Feed-back from those who attended has been extremely positive, and we look forward to building on your suggestions for further topics in the 2011 plans!
AFA would like to thank all members of Faculty who so kindly gave their time to attend and support the meeting and to the companies who helped make the exhibition such a success.
Exercise and AF, is there any evidence and what does it suggest?
Presented by Dr Andreas Wolff, GPwSI, Darlington
AFA Patient Day at The Heart Rhythm Congress 2009
This year’s AFA Patient Day was held on Sunday 18th October at the Birmingham Hilton Metropole Hotel. More than one hundred members attended to listen to a wide range of presentations and browse the first dedicated Patient Exhibition at HRC. This year, both Arrhythmia Alliance (A-A) – www.heartrhythmcharity and the Syncope Trust And Reflex anoxic Seizures (STARS) – www.stars.org.uk held Patient Day meetings at the same event, so once registered, delegates could select from more than twenty presentations during the day!
To register an interest to attend future AFA Patient Day events, please email firstname.lastname@example.org.
Many AF presentations from the day have kindly been permitted to be included on the AFA website by the individual presenters. Please click on the following links to read notes and view slides of the day.
1) The Patient Day Agenda – Sunday October 18th 2009 at the Heart Rhythm Congress
2) A Patient’s Journey – Mr Bob Dove, AF patient
3) Seeking an Understanding – Mr Martin Harman, AF patient
4) Causes and Triggers of Atrial Fibrillation – Dr Andrew Grace
5) Cognitive Behaviour Therapy for AF – Dr Graeme Gillespie
6) Catheter Ablation for AF, is it a cure? – Dr Mark Earley
7) Excercise and AF - Professor Patrick J Doherty
AFA Patient Day - Europe AF 2008
AFA Patient Day at Heart Rhythm Congress 2008